Select Publications

Edwards JD, Wocial LD, Madrigal VN, Moon MM, Ramsey-Hunt C, Walter JK, Baird JD, Leland BD. Continuity Strategies for Long-Stay PICU Patients: Consensus Statements from the Lucile Packard Foundation PICU Continuity Panel. Pediatric Critical Care Medicine 2023; 24(10):849-861.

Williams EP, Madrigal VN, Leone TA, Aponte-Patel L, Baird JD, Edwards JD. Primary intensivists and nurses for long-stay patients: A survey of practices and perceptions at academic PICUs. Pediatric Critical Care Medicine 2023; 24(6):436-446.

Salant JA, Ganghopadhyay M, Jia H, Wocial LD, Edwards JD. Distress and the Long-Stay Pediatric ICU Admission: A Longitudinal Study of Families and the PICU Medical Team. Journal of Pediatric Intensive Care 2023; 12(3):188-195.

Edwards JD, Williams EP, McHale BL, Lucas AR, Malone CT. Parent and Provider Perspectives on Primary Continuity Intensivists and Nurses for Long-Stay PICU Patients. Annals of the American Thoracic Society 2023; 20(2):269-278.

Leland BD, Wocial LD, Madrigal VN, Moon MM, Ramey-Hunt C, Walter JK, Baird JD, Edwards JD. Group Concept Mapping Conceptualizes High Quality Care for Long Stay Pediatric Intensive Care Unit Patients and Families. Journal of Pediatrics 2023; 252:48-55.

Edwards JD, Williams EP, Wagman EK, McHale BL, Malone CT, Kernie SG. A Single-Centered Randomized Controlled Trial of Primary Pediatric Intensivists and Nurses. Journal of Intensive Care Medicine 2022; 37(12):1580-1586.

Edwards JD, Goodman DM. The Child with Severe Chronic Illness in the ICU: A Concise Review. Critical Care Medicine 2022; 50(5):848-859.

Edwards JD, Panitch HB, George M, Cirrilla AM, Grunstein E, Wolfe J, Nelson JE, Miller RL. Development and validation of a novel informational booklet for pediatric long-term ventilation decision support. Pediatric Pulmonology 2021; 56(5):1198-1204.

Edwards JD, Jia H, Baird JD. The impact of eligibility for primary attendings and nurses on PICU length of stay. Journal of Critical Care 2021; 62:145-150.

Foy CM, Koncicki ML, Edwards JD. Liberation and Mortality Outcomes in Pediatric Long-term Ventilation: A Qualitative Systematic Review. Pediatric Pulmonology 2020; 55(11):2853-2862.

Edwards JD, Panitch HB, Nelson JE, Miller RL, Morris MC. Decisions for long-term ventilation for children. Perspectives of family members. Annals of the American Thoracic Society; 2020; 17(1):72-80.

Koncicki ML, Zachariah P, Lucas AR, Edwards JD. A multi-institutional analysis of children on long-term non-invasive respiratory support and their outcomes. Pediatric Pulmonology2018; 53(4):498-504.

Edwards JD, Panitch HB, Constantinescu A, Miller RL, Stone PW. Survey of financial burden of families in the U.S. with children using home mechanical ventilation. Pediatric Pulmonology2018; 53(1):108-116.

Edwards JD, Morris MC, Nelson JE, Panitch HB, Miller RL. Decisions around long-term ventilation for children: Perspectives of directors of pediatric home ventilation programs. Annals of the American Thoracic Society 2017; 14(10):1539-1547.

Edwards JD, Houtrow AJ, Lucas AR, Miller RL, Keens TG, Panitch HB, Dudley RA. Children and young adults who received tracheostomies or were initiated on long-term ventilation in pediatric ICUs. Pediatric Critical Care Medicine 2016; 17(8):e324-334.

Edwards JD. Palliative care and end-of-life considerations in children on chronic ventilation. Chapter in Sterni LM, Carroll JL. Caring for the ventilator-dependent child: A clinical guide. 2016. Humana Press.

Kun SS, Edwards JD, Davidson Ward SL, Keens TG. Hospital readmissions for newly discharged pediatric home mechanical ventilation patients. Pediatric Pulmonology 2012; 47(4):409-414.

Edwards JD, Kun SS, Keens TG. Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review. Journal of Pediatrics2010; 157(6):955-959.