Select Publications

Edwards JD, Panitch HB, Nelson JE, Miller RL, Morris MC. Decisions for long-term ventilation for children. Perspectives of family members. Annals of the American Thoracic Society; 2020 Jan;17(1):72-80.

Koncicki ML, Zachariah P, Lucas AR, Edwards JD. A multi-institutional analysis of children on long-term non-invasive respiratory support and their outcomes. Pediatric Pulmonology 2018; 53(4):498-504.

Edwards JD, Panitch HB, Constantinescu A, Miller RL, Stone PW. Survey of financial burden of families in the U.S. with children using home mechanical ventilation. Pediatric Pulmonology 2018; 53(1):108-116.

Edwards JD, Morris MC, Nelson JE, Panitch HB, Miller RL. Decisions around long-term ventilation for children: Perspectives of directors of pediatric home ventilation programs. Annals of the American Thoracic Society 2017; 14(10):1539-1547.

Edwards JD, Lucas AR, Boscardin WJ, Dudley RA. Repeated critical illness and unplanned readmissions within 1 year to PICUs. Critical Care Medicine 2017; 45(8):1276-1284.

Edwards JD. Anticipatory guidance on the risks for unfavorable outcomes among children with medical complexity. Journal of Pediatrics 2017; 180(1):247-250.

Edwards JD, Voigt LP, Nelson JE. Ten key points about ICU palliative care. Intensive Care Medicine 2017; 43(1):83-85.

Edwards JD, Houtrow AJ, Lucas AR, Miller RL, Keens TG, Panitch HB, Dudley RA. Children and young adults who received tracheostomies or were initiated on long-term ventilation in pediatric ICUs. Pediatric Critical Care Medicine 2016; 17(8):e324-334.

Edwards JD. Palliative care and end-of-life considerations in children on chronic ventilation. Chapter in Sterni LM, Carroll JL. Caring for the ventilator-dependent child: A clinical guide. 2016. Humana Press.

Edwards JD, Vasilevskis EE, Yoo EJ, Houtrow AJ, Boscardin WJ, Dudley RA, Okumura MJ. Adults with childhood-onset chronic conditions admitted to U.S. pediatric and adult intensive care units. Journal of Critical Care 2015; 30(1):201-206.

Edwards JD, Lucas AR, Stone PW, Boscardin WJ, Dudley RA. Frequency, risk factors, and outcomes of early unplanned readmissions to PICUs. Critical Care Medicine 2013; 41(12):2773-2783.

Edwards JD, Houtrow AJ, Vasilevskis EE, Dudley RA, Okumura MJ. Multi-institutional profile of adults admitted to pediatric intensive care units. JAMA Pediatrics 2013; 167(5):436-443.

Edwards JD, Houtrow AJ, Vasilevskis EE, Rehm RS, Markovitz BP, Graham RJ, Dudley RA. Chronic conditions among children admitted to U.S. pediatric intensive care units: their prevalence and impact on risk for mortality and prolonged length of stay. Critical Care Medicine 2012; 40(7):2196-2203.

Edwards JD, Kun SS, Graham RJ, Keens TG. End-of-life discussions and advance care planning for children on long-term assisted ventilation with life-limiting conditions. Journal of Palliative Care 2012; 28(1):21-27.

Kun SS, Edwards JD, Davidson Ward SL, Keens TG. Hospital readmissions for newly discharged pediatric home mechanical ventilation patients. Pediatric Pulmonology 2012; 47(4):409-414.

Edwards JD, Rivanis C, Kun SS, Caughey AB, Keens TG. Costs of hospitalized ventilator-dependent children: differences between a ventilator ward and intensive care unit. Pediatric Pulmonology 2011; 46(4):356-361.

Edwards JD, Kun SS, Keens TG. Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review. Journal of Pediatrics 2010; 157(6):955-959.

Edwards JD, Davidson EJ, Houtrow AJ, Graham RJ. Pediatric resident attitudes toward caring for children with severe disabilities. American Journal of Physical Medicine & Rehabilitation 2010; 89(9):765-771.

Edwards JD, Kun SS, Keens TG, Khemani RG, Moromisato DY. Children with corrected or palliated congenital heart disease on home mechanical ventilation. Pediatric Pulmonology 2010; 45(7):645-649.